| Contribution title |
Parents experiences of young children with autism spectrum disorders. A qualitative study on parenting, parental stress and family life. |
| Contribution code |
D3.014 |
| Authors |
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Gunn Karin Brechan-Skjetne.
Norwegian University of Science and Technology. Regional Centre for Child and Youth Mental Health and Child Welfare (RKBU Central Norway), Department of Mental Health, Faculty of Medicine and Health Sciences.
Presenter
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Rannei Sæther
Regional Centre for Child and Youth Mental Health and Child Welfare (RKBU Central Norway), Department of Mental Health, Faculty of Medicine and Health Sciences, Norwegian University of Science and Technology. Oslo Metropolitan University, Department of Re
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Ragnhild Bjørknes
The Norwegian Center for Child Behavioral Development (NUBU). Regional Centre for Child and Youth, Mental Health and Child Welfare (RKBU West Norway), NORCE Norwegian Research Centre AS.
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Anne Lise Høyland
Regional Centre for Child and Youth Mental Health and Child Welfare (RKBU Central Norway), Department of Mental Health, Faculty of Medicine and Health Sciences, Norwegian University of Science and Technology, Trondheim
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Synnøva Hystad Alsaker
Health Bergen Haukeland University Hospital Mental health care for children
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Synnøva Hystad Alsaker
Health Bergen Haukeland University Hospital Mental health care for children
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Poster |
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Abstract
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Aims: Parenting and family life can be challenging with a child with autism spectrum disorders (ASD). Several studies indicate a demanding parent role, implicating higher levels of parent stress. There are few qualitative studies focusing on parenting, parent stress and family life with the youngest children, and there is a lack of knowledge from the Scandinavian countries. Scandinavian culture has a long history of universal welfare policies. Family life is characterized by high female participation in work life, early father involvement and an almost universal coverage of childcare. Nearly all children in Norway attend kindergarten. The aim of the present study was to explore the experiences from parenting, parenting stress and family life in Norwegian parents of young children with ASD.
Methods: A qualitative research design conducting semi-structured interviews of parents. The present study is part of “Enabling parents of children with autism spectrum disorders – a randomized controlled study on parenting programs” (ENACT) and participants was recruited from the participating clinics using convenience sampling. The interview guide included questions to explore parenting, parental stress and family life. Data was analyzed with systematic text condensation.
Results and Conclusion: We conducted 13 semi-structured individual interviews including eight mothers and five fathers of children, aged 3 – 5 years old, diagnosed with ASD. We will present results from this qualitative study and discuss practical implications focusing on the parenting, parenting stress and the family situation. The parents’ experiences with the Scandinavian welfare state will be emphasized.
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Presentation
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