Detailed contribution information
| Contribution title | 2507 - A qualitative study of parental decision to use medicines in Attention-Deficit-Hyperactivity-Disorder (ADHD) |
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| Contribution code | PS01-48 (P) |
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| Form of presentation | Poster |
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| Abstract |
Objectives ADHD medicines carry well established and significant safety risks in children. Despite these risks they remain a cornerstone of treatment and prescribing rates are increasing. We sought to explore the role of safety concerns and side effects in the parents’ decision to treat their children with medicines and their experience of side effects with treatment. Methods In-depth semi-structured qualitative interviews were conducted with ten parents of children receiving ADHD medicine treatment. Verbatim transcripts were inductively analysed using a thematic approach and key themes were identified. Results Concerns about side effects were reported by all parents with three key themes emerging. Fear of side-effects was reported by all parents, with the initial concern relating to the unknown effects of a long-term treatment that could affect the developing brain. A perception of lack of an alternative option was a key theme, with the decision to seek help often coming at a time of perceived crisis, or pivotal educational moment meaning there was a need for some treatment. Medication was the only option reported to be offered in the majority of cases, making the consideration of side-effects less relevant. A balance of risk and benefits is constantly re-calibrated by parents as therapy is commenced and continued, with social, family and educational improvements noted as important and perceptible benefits. Risks were noted by all parents as being a concern, but to be expected and somewhat tolerated particularly those that affected sleep, initial worsening of symptoms and appetite/weight loss but monitoring means that the concern of other side effects are lessened. Conclusions Time pressure and limited information alongside the lack of access to services left parents feeling starting ADHD medicines was their only option, subordinating the concern over side effects to a varying extent. Upon starting treatment, adverse effects were ubiquitous but benefits of treatment were also obvious. While on treatment parents remained concerned about use of medicines and the quest for information was ongoing. Further work is needed to prepare and provide resources and options for parents to allow a fully informed decision to treat children with ADHD medicines. |