Detailed contribution information
| Contribution title | 2541 - Adaptation and Resilience in Families of Children with 22q11.2 Deletion Syndrome |
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| Contribution code | PS03-65 (P) |
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| Form of presentation | Poster |
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| Abstract |
Objective: Empirical evidence suggests that whilst a child with a disability can be seen as a positive within a family unit, many stressors co-exist for parents which can negatively impact on families’ adjustment and overall adaptation to a child with a disability. However there is evidence to suggest that families can and do adjust and adapt and ultimately become resilient. The purpose of this explanatory sequential mixed methods study is to describe and explore adaptation and resilience in families of children with the genetic disorder 22q11.2 deletion syndrome. Methods: An explanatory sequential mixed methods approach with two distinct phases including a quantitative investigation and a qualitative exploration. Validated self-report questionnaires are used to collect data from parents/significant family members of children who have a diagnosis of 22q11.2 deletion syndrome living in Ireland. Descriptive statistics will be used to describe, compare and summarise data relating to both the dependent and independent variables. Inferential statistical analysis will be performed to investigate the relationship between the dependent and independent variables. Following quantitative data analysis, the qualitative phase of the study will aim to explain significant findings, outliers or unexpected results from the quantitative phase of the study, using a purposive subsample. Data will be collected using one-to-one individual semi-structured interviews. Qualitative data will be analysed using Colaizzi’s (1978) framework and then used to validate or expand on the information from the quantitative phase of the study. Results: This study is currently in progress therefore no results are available as yet. However, preliminary findings for the quantitative dataset will be presented relevant to the development of resilience of parents/significant family members of children with 22q11.2 deletion syndrome. Conclusions: To be discussed at the symposium. |