Detailed contribution information
| Contribution title | 2978 - DETERMINING THE FAMILY NEEDS OF DOWN SYNDROME CHILDREN'S MOTHER AND THEIR VIEWS ON SOCIAL SUPPORT PERCEPTIONS |
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| Contribution code | PS02-57 (P) |
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| Form of presentation | Poster |
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| Abstract |
DETERMINING THE FAMILY NEEDS OF DOWN SYNDROME CHILDREN'S MOTHER AND THEIR VIEWS ON SOCIAL SUPPORT PERCEPTIONS 1)Res. Assist.MERİH TOKER 2)Assoc. Prof. Ş.SENEM BAŞGÜL 3)Assist. Prof. LATİFE ÖZAYDIN OBJECTIVES Cultural and social changes influence family structure, on parental roles, attitudes and expectations regarding child rearing.Depending on the needs of the individual with Down's syndrome, domestic stress and anxiety affect parental sibling relationships.The family needs, defined as social and psychological support from the environment, especially when the mother copes with intense stress, affects her social support perception and makes her stronger in life The main purpose of this study is to examine the family needs of mothers with children with Down's syndrome and to determine their views on perceptions of social support in this framework. METHOD The research involved 20 voluntary participants who are parents of individuals with down syndrome and locate in Gaziantep and Istanbul in Turkey. The data of the study were obtained via interviews with the parents, using semi-structured interview technique. As the result of mothers interview, the themes were determined and content analysis was used. RESULT The result of the study showed that the mothers of children with DS diagnostic need information about the concepts, deficiencies in areas which their children have and what they can do for their children, and also they stated the need of capital to meet their children’s need and to have better educational opportunities. The mothers focused mostly on their children’s education. They expressed their needs with respect to the time increase in the institutions which they were trained in management units, the arrangement of social activities, and the supervision of trainers. The mothers stated their expectations from the experts about speech language area for their children. The results also display that the mothers who lived in extended family need high level of support. CONCLUSION As much as the happiness brought by the new participant to the family, the necessity or the developmental retardation of the new member also affect the level of acceptance of the parents, causing stress, anxiety and low expectations in family members (Dunn, 1988,Dyson 1993& Gutman, 2002). This service network, which supports the parents while strengthening the family system, is especially helpful for the mother when she is experiencing intense stress (Sucuoğlu, 1995). |